Tay-Sachs is a rare recessive genetic disease caused by the absence of a particular enzyme that causes death of nerve cells resulting in progressive neurological disorders.
Vera Pesotchinsky was diagnosed with Late-onset Tay-Sachs in 2000, after 8 years of being misdiagnosed. The diagnosis came as somewhat of a relief, and her childhood pattern of clumsiness and speech difficulties finally made sense.
Vera is a long time friend and client of Daniella and Al. In support of her, they are organizing a fundraiser to help raise money for a new clinical trial to help treat Tay-Sachs.
They invite you to donate and/or attend the fundraiser!
When: Sunday March 20th 2016 at 10:30 a.m.
Where: Bay Area Fitness and Nutrition – 298 San Antonio Rd #300, Mountain View
What: Fundraiser including: Two 30 min circuit classes at 10:30 and 11:15 each. Max 10 attendees per class *
Donations: $50 minimum suggested donation, click here to donate
Light refreshments and snacks will be provided.
*Please RSVP if you are planning to attend either circuit class, thanks!
Vera has organized a research fund under the umbrella of the NTSAD, the National Tay Sachs and Allied Disease Association, click here to make a donation. You can make a donation to Vera’s fund and read more about her story and disease at the site above.